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16th Feb

2012

Spring is right around the corner for those of us living in Greenville, South Carolina. We have already had enough warm, sunny days to give everyone a good dose of allergies and vacation-fever.  Everyone I talk to seems to be planning ...

26th May

2011

I never stop being amazed and touched by the stories that come to us through this web-site.  The brave mothers, strong children, and newly empowered patients that have fought ADEM and won are extremely dear to my heart.  It is ...

29th Jul

2010

Shortly after lunch I received an email from a Mom who had gone to Neely’s Miracle looking for help and contacted me.  A friend of a friend of a friend (that’s exactly how it should work) had told her about ...

14th Jul

2010

Thanks to The Transverse Myelitis Association, I was given the opportunity to reach out to a family that is recovering from ADEM. (I haven’t yet asked her parents permission to share her story – so I won’t share any personal ...

2nd Jul

2010

Many of you have asked exactly what is ADEM or Acute Disseminating Encephalomyelitis? So here  goes… Often referred to as ADEM,  Acute Disseminating Encephalomyelitis essentially means you have inflammation in the brain that is ...

13th Jun

2010

It’s why I built this site… Neely’s recovery from ADEM (Acute Disseminating Encephalomyelitis) is just part of the story I hope to share with this web-site. Neely’s condition and recovery have inspired many ...

6th Jun

2010

We had a great visit with Dr. Morales this week. Neely’s continues to do well and is tolerating her meds as well as we could expect. Keppra (anti-seizure) can cause irritability and insomnia – so we are always battling ...

24th May

2010

On May 15, 2009, my 2 year old daughter Neely caught a virus that triggered an immune disorder. In less than 12 days she went from a healthy toddler to a heart beat and a shollow breath.  Our pediatrician at the time did not meet our ...

5th May

2010

This year felt like 10 years. As the one year anniversary approaches, I have found myself constantly torn between relief and dread. Logically, I realize that Neely has surpassed every expectation this year. She performs at or above age ...

30th Oct

2009

It really is true that we all go through life thinking that “It” only happens to other people. But when “It” happens to you and your family – you are forced to look at life from a different perspective. Make sure you know ...

27th Oct

2009

Over the last 2 weeks Neely has been having 10 to 15 “episodes” per day. The episodes mimic the signs of a seizure and caused enough concern for her Neuro-team to schedule a long-term EEG. (4-6 hours in length) Neely did ...

30th Sep

2009

Neely’s MRI and EEG confirmed that the seizure activity she experienced this week-end was in fact a result of her ADEM. (This is the best news we could have received given the circumstances) It appears that there is no permanent ...

28th Sep

2009

On Saturday, We were out for a typical day of shopping and errands in Greenville. Neely had been laughing and playing with Ava as normal. We were in the store looking around when all of sudden she wouldn’t respond to a question ...

7th Aug

2009

Neely went for her first “out-of-the-hospital-MRI” on Friday morning. Her Doctor (Greenville, SC) has warned us to keep our expectations in check – while we would all love to see a “clean MRI” – that ...

10th Jun

2009

After 18 ridiculously long hospital days for ADEM (Acute Disseminating Encephalomyelitis) recovery, the Thompson family is back together under one roof. Neely came home yesterday afternoon! I was with Christy at the hospital when she ...

8th Jun

2009

Jon and I went to visit Neely at Roger C Peace (Greenville, SC therapy) on our way to our anniversary dinner last night. Before getting to her room, we heard giggles from the playroom on the floor. We peeked in to find my Mom and Dad ...

3rd Jun

2009

The results from her MRI are in. Hopefully I can explain this well. The MRI shows that the inflammation on the outside of her brain has gone down significantly, if not completely. However, the inner ‘gray matter’ part of ...

1st Jun

2009

Neely’s MRI that was scheduled for today has been postponed until tomorrow. She is still in PICU at GHS Childrens Hospital. Christy and Jamie are staying with her. The nursing staff has limited visitors. This recovery period for ...

28th May

2009

I talked with Jamie earlier today and he reports that they removed the feeding tube from Neely sometime during the night to help her rest better. They will need to reinsert it if she doesn’t want to eat on her own. She has sipped ...

27th May

2009

Neely’s condition has a name now. Acute Disseminated Encephalomyelitis. Her doctors says this is an extremely rare condition that he has only seen a couple of times in his 30 year career. This is how her doctor explains what has ...