"The difference between life and death...

Thanks to The Transverse Myelitis Association, I was given the opportunity to reach out to a family that is recovering from ADEM. (I haven’t yet asked her parents permission to share her story – so I won’t share any personal details here until I do.)

Suffice it to say that she is a 3 year old little girl (with features that are strikingly familiar to Neely – that was a shock.)  She developed ADEM in May this year (Neely’s ADEM came May last year) and is doing really well in her recovery.

Naturally, there are a lot of similarities in our families experiences and it felt really good to make that connection.  When we were in the hospital last year, I could have really used a phone call from a parent who had gone through what we were experiencing.  Assuming other parents also feel that – I am looking forward to the opportunity to reach out to  those families and offer them support and encouragement.